Tag Archives: art in berlin

My Fantasy Wheelchair, Part 2!

My Fantasy Wheelchair Version 2 by Suzanne Forbes July 6 2021This is the wheelchair I need for the goth club.

And the picnic in the park, and the life drawing salon in the old mansion with no elevator. Rideable, stair-climbing wheelchairs are an absolutely necessary part of the future.

Probably this one should have a cup holder for the disgusting Red Bull (tastes like carcinogenic Gummi Bears! and I always get the diet kind cause it tastes even worse!) that I like to drink when I draw at a nightclub.

My Fantasy Wheelchair by Suzanne Forbes June 20 2021 detail 1Since it’s Disability Pride Month, I thought I’d share some info on my personal disability sich, at this moment.

Several loved ones have asked, what exactly is my disability deal?

I’m an out disabled person, and you can always ask me about my limitations and conditions. But that applies to me only, just this one disabled person who is me 🙂

Well, official diagnoses: Hashimoto’s disease, asthma, C-PTSD, PTSD, OCD, lifelong severe depression (in total remission the last eight years!!), a rare circadian rhythm disorder called DSPS, “medical obesity” and bum knees. Unofficial: crippling fatigue, dizziness, vertigo and a fair amount of muscular pain, caused by some kind of ME/CFS, fibromyalgia, ME or lupus. Working on that diagnosis situation.

But what really makes my daily life challenging?  Dynamic Disability, a term coined by Brianne Benness on twitter. Benness is also creator of the NEISVoid, a vibrant disability community formed around the NEISVoid hashtag. You can read/hear voices from the Void on NoEndInSight.co. and support Brianne’s Void work on Patreon.

What Dynamic Disability means is that my capacity to function fluctuates.

I have good days and bad days, and sometimes both in batches. On the bad days, I sleep 20 hours. On the good days, I can unload the dishwasher and load the washer, the same day.

And work on art!!!

No matter what my condition is physically, I am fine spiritually and usually pretty good mentally, in the eight years since my remission from depression began.

The disability community has given me a way to understand and accept my limitations.

My Patrons on Patreon have given me a way to work and keep working in ways that are safe and manageable for me. I look forward to increased mobility and support as assistive technology develops. Fantasy wheelchair version one is here.

I’m glad to be alive and happy to be here, Disabled and Proud!

I am incredibly grateful to my Patreon Patrons, whose monthly financial support makes it possible for me to continue making art as a disabled person.

GodXXX Noirphiles performs at Maxim Gorki Theater

GodXXX Noirphiles performs at Maxim Gorki Theater on June 18 2021 by Suzanne ForbesLast night GodXXX Noirphiles performed live at Maxim Gorki Theater!

Their performance was part of Hyenaz Hyenaz “Hyena Secretions” series. and the show was livestreamed on youtube. Hyena Secretions is part of “Pugs In Love – Queer Week” at the theater. I haven’t been to Maxim Gorki, but it looks cool as hell.

drawing GodXXX Noirphiles on June 18 2021 by Suzanne ForbesI so much admire GodXXX, and I am always so thrilled to see him perform.

I feel loose and wild when I draw her, and I take chances.

detail mixed media drawing of GodXXX Noirphiles June 18 2021 by Suzanne ForbesAs you can see, I used actual wire to represent their silver neck ornament!

I didn’t have/couldn’t find silver wire the right gauge, so I used my chrome marker on a piece of electrical wire! I punched holes in the drawing to attach it! It looks cool 🙂

GodXXX Noirphiles has a Patreon and you can support their art!!

He/she/they are posting incredible new work, like this video on Precolonial Black Queer and Trans History and their groundbreaking Queer Birthing Series. You can help support this new parent, House of Living Colors mama, and powerful creative! Linktree here, Insta here!

I am incredibly grateful to my Patreon Patrons, whose monthly financial support makes it possible for me work safely at home, documenting Berlin performers.